Linden native advocates for son with dwarfism through children’s book

Nearly four years ago, Ashequka Lacey was faced with a decision that would change her life completely.

She was 20 weeks pregnant with her second child and was about to learn the baby’s gender when the doctor noticed during an ultrasound that one of the baby’s femurs was abnormally small.

After a more in-depth ultrasound, her doctor revealed that her baby had a lethal case of dwarfism, and later, that his chances of surviving more than a few minutes were “almost zero to none.” At every appointment, her doctor advised her to terminate the pregnancy, she said.

But the Linden native and Near East Side resident researched her baby’s condition, thanatophoric skeletal dysplasia, a rare form of dwarfism. She learned of the dozen or so children living with thanatophoric dysplasia in the United States and others around the world.

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